Alexis got married last weekend so obviously all the weeks leading up to that were gearing up. But to be honest I didn't have that much to do for the wedding on the weekends. But a family reunion, a wedding, a bridal shower and other family functions have kept us close to home.
So it was super fun to get away this past week and go up to Restoration Bluff and have some good ole family fun! We beached it one day, which I have no physical proof because the phone stayed in the house. We went to Michigan's adventure another day, which was a blast. I think the Schrock's could have closed the park down. And then we had a rainy/windy day indoors. So all in all we got a bit of everything.
I feel so very blessed, and I mean really blessed with the progress Gat has made in the last year. I don't even know where to start because as quick as new things come just as quick they become normal to us.
Just a few milestones we have hit recently (like last 4 months). . .
-Gatlyn had his first and second rounds of Botox. He gets 8-10 shots of Botox in legs and ankles which help with spasticity. And both times we have seen major improvements in his range( how far he can stretch legs and ankles).
But I will be up front with you. The first round was the absolute hardest thing to have to put him through. Surgery is different because generally in our case it isn't just because, but Botox is a personal choice to help Gatlyn. You don't have to do it, it's tough- and I don't think a lot of people could handle that. But once you see the results it helps. They give him a dose of verset that helps as well.
-Gatlyn officially can walk on his own!!!!!!!!
We did serial casting which is where they do legit plaster/fiber glass casts and we went weekly to get them taken off and put new ones on. These were 2 hour appointments each time and at first it was hard for Gat but then he got really good at it. The point of this was to do a around the clock stretch to get his feet to "neutral"(foot could be completely flat on ground). Before the Botox and casting Gatlyn was always completely on his toes he could not put his heels to the ground at all. We started casting soon after his first round of Botox. And it worked everyone! As soon as his right foot got into neutral he started walking short distances. Then the left foot got to neutral and the kid ditched the walker and we haven't had it since! (I would put pictures on of this but I just uploaded them to shutterfly and don't have them on my phone anymore😑). Now Gatlyn can get to standing on his own without holding onto anything!!
- Gat is also on a 2 month trial period without using his feeding tube. Which will be so awesome if we can get that out but we will see in a couple months.
- Gatlyn is entering his second year of preschool and he is super stoked for it. He cannot wait to go and see his friends. It is nice because he get Occupational and Physical Therapy right there at school.
- He is at Mary Free Bed again for more therapy to make sure the Botox is taken advantage of.
-Oh yah. . . He now has a big boy bed. He was in a crib until just a couple months ago. I feel bad but I never even thought twice about him being to old for a crib- but he told my mom one day that Henry(a friend who is just 2) had a big boy bed and he (Gatlyn) had a baby bed. I know it seems ridic but with Gat being so small (just 27 pounds) And he never complained I never thought to put him in a bigger bed. But rest easy folks Gat is in a toddler bed and the transition couldn't have went smoother lol.
That's really all I can think of right now! Now that I am trying to post monthly I can keep you updated as things happen:)